Ehlers-Danlos Syndrome

Articles

✨CALLING ALL BLOGGERS/ POTENTIAL BLOGGERS✨
Do you have Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder, or maybe your children do, or perhaps your partner? Articles submitted can be on a number of platforms, you retain full ownership of anything you submit to us. We can also post them completely anonymous if you prefer.
E-mail your articles, with images/ videos and title, to:
eds4ire@gmail.com

Kitty Colbert

Why Rare Disease Day Is Important To Me

Rare Disease Day is set to be celebrated on February 28th this year. This day is for everyone with rare medical issues to spread awareness of their various c...

Kitty Colbert

Disabled isn't a dirty word

There's a lot of talk around at the moment on disability and conditions and how we express these as personality traits within society as a whole, and on a pe...

Kitty Colbert

What a Bad Day Feels Like With EDS

Physical pain is hard to talk about, almost as much as it is to live with. With EDS, hip dysplasia and Chiari Malformation I'm never not in pain. I think tha...

Anon

What Living With EDS Feels Like

It's waking up in the morning and instantly being consumed with pain. It's forcing yourself out of bed and working through your physio exercises just so that...

Kitty Colbert

Ehlers-Danlos Q&A

I thought it would be rather nifty to include some of my pals in a blog post, while also helping to spread awareness of Ehlers-Danlos syndrome. If you would ...

Kitty Colbert

A Message To The Newly Diagnosed

I first wrote this piece for Irish EDS & HSD as part of EDS awareness month in May, and thought I would share it here too. See the original article here. For...