Leanne

I have suspected POTS, HEDS and undiagnosed GI issues that started getting really bad in March that have now lead to an eating disorder as it has not been diagnosed or treated properly by doctors 

Hi my name is Leanne, I'm 17 and live with multiple chronic illnesses. I made my Instagram account to post my medical stuff on, for me to blog and for awareness about chronic illness to others.


Firstly I want to say all of these pictures (see her Instagram) are recent, in all of them I am "sick". In some you wouldn't think it but in others it's obvious. This is the reality of invisible illnesses.


Background: I live in Ireland and going into my last year of secondary school. I am a competitive swimmer since the age of 11, I have been swimming since I was 4. I have always been very sporty and love the outdoors. As far back as I can remember I have been very flexible, it was a party trick and it didn't cause much of an issue until I started swimming competitively. When I was 11 I developed a trapped nerve in my left shoulder from swimming and after that my whole body started having different issues, pain in practically every joint and I didn't know why. I had gone to a physio for my shoulder. We brought up these issues and he said I was "just hypermobile and I would grow out of it." 4 years down the line and you may have guessed it, I didn't grow out of it, it got a lot worse. Leading to a diagnosis with HSD.


Diagnoses:

• Hearing impaired, deaf in right ear from birth

• IBS age 14

• HSD age 15-16

• chronic migraines age 17

• functional dyspepsia age 17

• ED age 17
• I have suspected POTS, HEDS and undiagnosed GI issues that started getting really bad in March that have now lead to an eating disorder as it has not been diagnosed or treated properly by doctors.
I have been having more symptoms of undiagnosed issues that I'm trying to get sorted here in Ireland we have no specialist for HSD/EDS, this means that any conditions that are linked with it also have no specialists that would link diagnoses together and therefore can misdiagnosis more easily, also meaning it's extremely hard to get diagnosed with anything in that nature. The nearest specialists are in the London, England. In the near future I hope to go there and get all my issues sorted and treated accordingly. I plan on documenting my whole journey for anyone that wants to follow along! 😃

You can follow Leanne's journey on her Instagram account 

- My Road To A Diagnosis