Personal Stories

Hear from the experts about what life is like in Ireland for EDS/ HSD patients -Those who are living through it.

If you would like to be included in this space, contact us.

Ruby
I will want my family but I can't. That makes me sad.
Lette
By August I was in a wheelchair
Kayleigh
I worry more each day about my deteriorating condition
Stevie
They printed out a Wikipedia page to give any doctors that would be treating me
Sarah M.
I wailed inside the airport... 
​I had to be comforted by strangers
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