Personal Stories

Hear from the experts about what life is like in Ireland for EDS/ HSD patients -Those who are living through it.

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People called me lazy

I will want my family but I can't. That makes me sad.

My issues lead to an eating disorder

I wailed inside the airport...
I had to be comforted by strangers

By August I was in a wheelchair

I worry more each day about my deteriorating condition

They printed out a Wikipedia page to give any doctors that would be treating me

Personal Stories

Evie

Ruby

Leanne

Sarah M.

Lette

Kayleigh

Stevie