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    Personal Stories

    Hear from the experts about what life is like in Ireland for EDS/ HSD patients -Those who are living through it.

    If you would like to be included in this space, contact us.

    Salt
    Salt

    My symptoms have been exacerbated by the lack of understanding in the Irish health system

    Evie
    Evie

    People called me lazy

    Ruby
    Ruby

    I will want my family but I can't. That makes me sad.

    Leanne
    Leanne

    My issues lead to an eating disorder

    Sarah M.
    Sarah M.

    I wailed inside the airport...  ​I had to be comforted by strangers

    Lette
    Lette

    By August I was in a wheelchair

    Kayleigh
    Kayleigh

    I worry more each day about my deteriorating condition

    Stevie
    Stevie

    They printed out a Wikipedia page to give any doctors that would be treating me

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